There is a big chance that you never heard of Ataxia Telangiectasia before. That’s not strange since there are only 15 children in The Netherlands with Ataxia Telangiectasia.
Ataxia Telangiectasia is an inherited vary rare and life threatening disorder.
Before Twan was diagnosed we’ve never heard about it ourselves.
Do you have questions? Remarks?
Do you want to be in contact with (other) families with a child with Ataxia Telangiectasia?
The Twan Foundation resides at the following address:
3903 DN Veenendaal
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