Who is Twan?
The Twan Foundation is founded by Rutger Baas en Rianne Kranendonk, the proud
parents of Twan. Twan is born in September 2010. At age 2,5 he was diagnosed with
Ataxia Telangiectasia.
Rutger and Rianne: "of course this is something you don’t wish for your child. With support from family, friends and a very good health care we found our way. We fully enjoy Twan!
More about Twan
Ataxia Telangiectasia
There is a big chance that you never heard of Ataxia Telangiectasia before. That’s not strange since there are only 15 children in The Netherlands with Ataxia Telangiectasia.
Ataxia Telangiectasia is an inherited vary rare and life threatening disorder.
Before Twan was diagnosed we’ve never heard about it ourselves.
Veelgestelde vragen over Ataxia Telangiectasia
- What is Ataxia Telangiectasia?
- How often does Ataxia Telangiectasia occur?
- Which are the symptoms of Ataxia Telangiectasia?
- What causes Ataxia Telangiectasia?
- How is Ataxia Telangiectasia treated?
- What is the prognosis of Ataxia Telangiectasia?
Contact the Twan Foundation
Do you have questions? Remarks?
Do you want to be in contact with (other) families with a child with Ataxia Telangiectasia?
The Twan Foundation resides at the following address:
Beukenstuklaan 35
3903 DN Veenendaal
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