Who is Twan?

The Twan Foundation is founded by Rutger Baas en Rianne Kranendonk, the proud
parents of Twan. Twan is born in September 2010. At age 2,5 he was diagnosed with
Ataxia Telangiectasia.
Rutger and Rianne: "of course this is something you don’t wish for your child. With support from family, friends and a very good health care we found our way. We fully enjoy Twan!
More about Twan

Ataxia Telangiectasia

There is a big chance that you never heard of Ataxia Telangiectasia before. That’s not strange since there are only 15 children in The Netherlands with Ataxia Telangiectasia.

Ataxia Telangiectasia is an inherited vary rare and life threatening disorder.

Before Twan was diagnosed we’ve never heard about it ourselves.

More information about A-T

Contact the Twan Foundation

Do you have questions? Remarks?

Do you want to be in contact with (other) families with a child with Ataxia Telangiectasia?

Contact form

The Twan Foundation resides at the following address:

Beukenstuklaan 35
3903 DN Veenendaal

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